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Adrian

This Is Your Gravy

April 26, 2022 by Adrian 2 Comments

Mom always held us to a high standard at school; she expected that we would excel, but demanded that we not leave any easy points on the table. Now the tables have turned.

“This is your gravy,” Mom would say, at times exasperated. “You have to do ALL the little things, the stuff you can control. You have be 100% at that stuff.”

Gravy, in this sense, was anything that was connected to our academic work and was easy to do. 20% of your grade was based on attendance? Then you never, ever miss a class, because that 20% is gravy. 50% of your grade is based on turning in weekly homework? For the love of god you turn those in every. single. week. because that 50% is gravy. Extra credit is offered? Take it, always, every time, because those points are gravy.

Mom expected my sisters and I to be excellent students and, for the most part, we were. Both of my sisters are really, really smart… almost as smart as I am. Just kidding — it’s not that close. But they are still super smart. 🙂

From grade school on, when it was report card time, anything that was not an A was going to be an issue. Mom’s dad, my grandfather, paid cash money for every A, so for me, the motivation was clear: get as many As as possible and go see Pop-Pop to get paid and then go to Clover to spend it.

Sometimes, an A just did not happen. If the effort was there, it was not a huge issue, but it was also understood that my primary focus in life would be to get whatever was not an A back to being an A.

However, if I did not deliver an A and it was because I lost points on attendance? Or I failed to turn something in on time? I didn’t take care of my gravy? Well, now we had a serious issue. Unacceptable. Punishments. Groundings. Surrender of Nintendo.

My parents did not punish us much (at least I was not punished that much), but if I brought home a B in a class because I didn’t do the extra credit or I missed a couple of weekly assignments? Well, then I was on the wrong side of the law.

Mom didn’t just talk the talk, either. When she went back to nursing school in the early 80s, we had a full house with a menagerie of pets. Dad was a Philadelphia police officer working all 3 shifts back then, we were all in Catholic school, and the family demands were high.

My Pop-Pop told my Mom he expected her to finish first in her class, and so that is what Mom set out to do. From a makeshift desk in an unfinished basement, surrounded by laundry that was never fully finished for the 3 years she went back to school, Mom attacked school. And after those 3 years, at her graduation, she achieved her goal: Mom finished first in her class… by just a couple of decimal points.

Just a couple of decimal points. Her name is on a plaque somewhere at the nursing school, and it is on there because of just a couple of decimal points.

You had better believe Mom knew this was because of gravy. One missed assignment over the course of the 3 years, one absence, one lazy moment, and Mom would have placed 2nd.

That was the standard we were held to; that was what was expected.

Now, here we are in this awful situation of the moment: pancreatic cancer. Chemo infusions. Appointments. Lab work. Test results.

There is so much that Mom cannot control, so much that none of us can control.

But there are some things we can control.

There is some gravy here.

Mom’s white blood cells were too low yesterday and we could not get the scheduled chemo infusion. This is due to the chemo mom received 2 weeks ago; the regimen she is on is the most aggressive (read: harshest) regimen a person can be on.

From the provider’s perspective, a delay in treatment, even a lowering of the dosage, is totally normal and expected; they start with the strongest dose and then dial it back as needed.

From Mom’s perspective, it was disappointing. Honestly, it was a bit disappointing for all of us. It was a let down. We were prepped and ready to go, and then we couldn’t. It felt like a step back, even though our provider assured us it was most definitely NOT a step back, but an expected part of crafting Mom’s treatment.

OK. Fine. But things feel how they feel, and initially at least, it felt bad when we were told after labs that Mom could not get chemo yesterday.

They want Mom to take an extra week, to eat well, to get lots of protein, and to get her white blood cell count back up. They are going to make some slight modifications to Mom’s treatment to account for the white blood cell count, as well as some other symptoms. But Mom’s job right now is to get the white blood cells back up. To eat, and to eat well.

Eating has not been easy so far. The first week after Mom’s first chemo was a struggle, and Mom lost a bit of weight. The second week was better, and Mom put some weight back on.

Now we have this extra week, and it is gravy. The extra credit assignment, the take-home test, the attendance points, are all just this: Mom needs to eat, and eat well, all week.

Today was off to a good start, with a lot of healthy food all morning and Mom and Dad off for a nice outdoor walk at the arboretum.

My brilliant sisters and my wife, as well as all of our wonderful Aunts and neighbors, are concocting all sorts of good things for Mom to eat.

Just saying: if I never say or hear the word “protein” again it will be OK.

Whatever Mom can enjoy eating, that is what we need to be seeing her eat.

Mom’s kitchen has always been a magical place; I am sure we can make this happen.

Pass the gravy, please.

Filed Under: Family, Update

Chemo 2: BLOCKED

April 25, 2022 by Adrian 7 Comments

Mom was supposed to get her second round of chemo today, but it was not meant to be. We could have known; all the signs were there.

It was not the construction right outside Mom’s door that prevented chemo today, but it didn’t help, and perhaps it was an omen.

After last Saturday’s ER trip, Mom had a really great week. Easter was fantastic, and then all week long Mom seemed to get stronger and better.

Visitors came and were shocked at how much better Mom looked.

By Wednesday, Mom was all about ”Bring it on.”

By Friday, Mom and Angella and Alia and Stella (granddaughter) were out shopping and getting a little retail therapy in; the weather was warm and sunny, and spirits were high.

Angella and Mom and T.J.Maxx

Everything seemed in place to go into Chemo 2 with high energy and motivation.

However, by Sunday evening Mom started feeling worse and worse; when I arrived around 630 p.m. I thought Mom was on heavy sedation, when in fact she had had several days with reduced pain meds and had been feeling great.

By 7 p.m., Mom needed to go lie down, and she was was out cold. We took her temp, and it was 99.4, and immediately we were concerned.

Everyone has been drilling us that if Mom’s fever gets to 100.4, we need to go to the ER immediately. Any ER, closest possible, and as quickly as possible.

So, we were worried. Mom’s temp went up to 99.7 by 10 p.m., and I decided to sleep over and Alia came back and called the overnight on-call doctor.

We had a call back within minutes — and having a doctor call you back at 11:15 p.m. on a Sunday night is both wonderful and sobering, because it is another realization that this is not a ”normal” medical situation. What Mom is going through is extraordinary. It is happening everyday to thousands and thousands of people, but it is something that happens in a space far outside the regular.

The doctor told us that we knew Mom best and, if we wanted to bring her to an ER, to do so, but if we wanted to let her sleep and check her temp again in a little bit, they would support that as well.

We opted for the latter, and by midnight Mom’s temp was down to 99. I stayed awake on the couch for a few hours, watching old episodes of The Sopranos, and around 2:30 a.m. Mom’s temp was still 99, so I decided to get some sleep myself.

After all, in the morning we were off for another long day at Penn’s Abramson Cancer Center. We knew this sort of thing was to be expected, but still, it catches you off-guard in a way, especially after such a ”normal” week. I think we all, unconsciously, or maybe even consciously, just want this not to be happening, and it is easy to convince yourself of that alternate reality if you are not careful. And who wants to be careful about that? It is much better to just sit and chat and eat with Mom and put all of this out of the forefront of your mind.

And then, without fail, reality will remind you what is what.

When I woke up and started getting ready, I noticed that the long-delayed and oft-delayed re-paving project on the street outside of Mom’s was finally looking to be finished… and I could tell it was going to overlap with when we needed to leave. You can check my Facebook if you want to read my rants about this Streets Dept. mess that has haunted us for like 4 weeks now. But this is not the space for that.

I kept looking at the Roller, parked right in front of Mom’s car, blocking the street and blocking our driveway, and wondering ”It is going to block us? Are we going to be blocked? Will I have to go out and tell them that my Mom needs chemo, and will they move everything out of the way? What if they can’t, and we miss our appointment? Will they reschedule?”

Fair questions, and ominous.

Because we would be blocked — not be the construction projects (which I evaded by moving all of the cones, driving on the sidewalk, making a u-turn in a neighbor’s driveway, and driving the wrong way on a one-way street for blocks and blocks) but my Mom’s White Blood Cells.

Mom, All Ready To Go

Surely, those of you who have been through this cancer/chemo dance were not surprised by the WBC issue. I understand it to be common. Our provider was adamant that Mom’s numbers were fine, that this was normal, and they just wanted to reschedule so she could have some time to get stronger. She repeated that Mom is starting out with the most aggressive chemo plan possible, and delaying and reducing dosage is normal, expected, and part of the plan.

So, we are wrapping up our day early. Mom is getting some IV fluids right now, and we have rescheduled the next three appointments. Mom can still have visitors, as her WBC are not at a dangerous level yet but they are still way too low and too low for chemo, so we might have some increased precautions when stopping by the house.

Mom, rocking out on her Air Pods and getting those IV fluids while we are here.

Either way, in a little under an hour we will head back home, hopefully onto a freshly paved street.

And we’ll try again next week.

Filed Under: Abramson Cancer Center, Update

April 25, 2022: A Medium Day (Chemo 2 Postponed)

April 25, 2022 by Adrian Leave a Comment

No fever, but Mom was sent home without Chemo due to low WBC. Update: Chemo 2: BLOCKED

Filed Under: Chemo 1, Daily Status

April 24, 2022: A Bad Day

April 24, 2022 by Adrian Leave a Comment

Started out OK; crashed around 1900. Fever as high as 99.7. Resolved overnight.

Filed Under: Chemo 1, Daily Status

April 23: A Good Day

April 23, 2022 by Adrian Leave a Comment

Ate a big breakfast, feeling great.

Filed Under: Chemo 1, Daily Status

April 22: A Good Day

April 22, 2022 by Adrian Leave a Comment

Ate a Big Mac; went shopping (TJ Maxx)

Filed Under: Chemo 1, Daily Status

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